EULAR PAED Podcast - "Understanding Rare Autoinflammatory Diseases From Recurrent Fever to Treatment Access"
The podcast "Understanding Rare Autoinflammatory Diseases: From Recurrent Fever to Treatment Access" explores rare autoinflammatory conditions, focusing on early symptoms, diagnostic challenges, genetic testing, treatment options, and barriers to accessing care. Experts and a patient share insights on conditions such as FMF, CAPS, HIDS, and systemic-onset JIA, emphasising the importance of advocacy, research advancements, and policy changes to improve patient outcomes.
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EULAR PAED Podcast - "Navigating the Transition: Growing Up with RMDs"
"Navigating the Transition: Growing Up with RMDs" is a moving and informative podcast that explores the journey of people with Rheumatic Musculoskeletal Diseases (RMDs) from childhood to adulthood. Hosted by Prof Jelena Vojinovic, and guests of this show is Indra Beer a young JIA patient and EMEUNET Member Dr Latika Gupta Rheumatologists for Adults. This 30-minute podcast explores the difficulties, victories, and pivotal moments encountered by young patients as they shift from paediatric to adult care.Drawing upon the expertise of a young patient who has experienced this transition firsthand and an experienced adult rheumatologist, this episode provides valuable insights, personal anecdotes, and practical advice for both patients and healthcare providers.
Welcome to the Paediatric EULAR Podcast, where we explore various topics related to Rheumatic and Musculoskeletal Diseases (RMDs) and ongoing research. Join us for insightful discussions, expert interviews, and updates on the latest advancements in the field, aimed at empowering our listeners with knowledge and understanding
Portugal